Its been 10 weeks since I started my dialysis. There's been a few ups n downs and frustrations but the Doctors and I think we have it under control now. The dialysis itself is going fine, I have the process down now. It has cleaned all the toxins that's been stored in my body so I do feel better. Got my appetite back and as of Thursday Dec 18th I reached 170 lbs. So have gained all the weight back that I lost.
There has been a few frustrations along the way. With the amount of dialysis fluid that I exchange everyday I get dehydrated very easily which drops my blood pressure. I try to keep drinking fluids and mix up some broth with extra sodium to help retain the fluids . It seems to help but I get very tired and not much stamina to do much. Also with the extra dextrose in the dialysis fluids that affect my blood sugars. There was a couple weeks where I couldn't get the levels below 400(normal range 120-150). I was adjusting my insulin pump daily to help get the levels down. Between my Doctors and I we finally got it under control and I'm doing much better now.
Last week I had a BIG scare. I finished my dialysis exchange and was dumping my drain bag when I felt all wet. I lifted my shirt and saw that the catheter had come apart so I was leaking all the fluid. I had to QUICKLY get to my supplies and get the emergency clamps to clamp off the end of catheter. My first thought was 'Im heading into surgery to repair this'-- I think if you'd taking my blood pressure at that time the bp machine would have blown up. Of course this was over the lunch hour so calling my Doctor and the Dialysis Center I only got their answering machines. I kept calling for an hour and finally got my Doctor's answering service, which called the Doctor and the Dialysis Center. My dialysis nurse called and told me to get there ASAP. I got a ride out there, don't think my jacket was zipped or my boots were tied. **I was in a hurry**
Colleen looked at the catheter and saw she could repair it.She got a new catheter put back together. But the next problem was a big possibility of infection. She called the Doctor to order the right antibiotics to get in me right away. We did an exchange with the antibiotics and then cross our fingers. We all think it was caught in time so NO infection ''thank god''.
So I have my good and bad days. But it looks like we have things under control. My lab work is coming back great. So I keep on with the dialysis and wait for that phone call for the transplant.
Saturday, December 20, 2008
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